Archive for December 2013

Your year-end gift helps VeDA meet our mission!

Posted by Kerrie Denner

As 2013 comes to a close VeDA is celebrating our victories and planning for an exciting 2014.  This year we were able to reach more people than ever before, providing information and solace to people seeking to understand their vestibular disorder and supporting our professional members who work tirelessly to diagnose and treat their patients.  Here are a few highlights:

Personalized Medicine: Matching Treatments to Your Genes

Posted by Kerrie Denner

You’re one of a kind. It’s not just your eyes, smile, and personality. Your health, risk for disease, and the ways you respond to medicines are also unique. Medicines that work well for some people may not help you at all. They might even cause problems. Wouldn’t it be nice if treatments and preventive care could be designed just for you? 

Genzyme and NORD Establish Patient Assistance Program to Help Undiagnosed Patients with Rare Diseases

Posted by Kerrie Denner

Genzyme, a Sanofi company, and the National Organization for Rare Disorders (NORD) today announced the creation of a fund to pay for standard diagnostic testing for people with mysterious, undiagnosed medical conditions.  The fund will help those who have applied to the National Institutes of Health (NIH) Undiagnosed Diseases Program, but who cannot afford the basic medical tests needed to make them eligible to participate in the NIH program.

Check VeDA Off Your List!

Posted by Kerrie Denner

That’s right, the holidays are just around the corner. For many of you this brings the hustle and bustle of family activities. For some it may also be accompanied by anxiety – what if your vestibular symptoms flare up? VeDA would like to offer you some tips and tools for coping with the holidays – click here to read our short publication, “Advice for the Holidays: Managing the Symptoms of a Vestibular Disorder.” 

The Vestibular Disorders Organization (VeDA) would like to inform you of the following clinical research study.

Posted by Kerrie Denner

People suffering from Meniere's disease experience a variety of symptoms that may come and go, ranging from extreme dizziness, vertigo (a feeling that your surroundings are moving when there is no actual movement), nausea, tinnitus (roaring, humming or ringing sounds in your ears), pressure and pain, and hearing loss.

If you suffer from Meniere’s disease local doctors need your help.


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